The Sarah Project follows Sarah, a 16 year-old at the time of the project. 

     

     Sarah has DiGeorge syndrome, a genetic disorder caused by a defect in chromosome 22. The effects of DiGeorge syndrome vary among those diagnosed. For Sarah, it's manifested in heart and palate issues, as well as a cataract in her right eye. Sarah also works daily to improve her communication skills as she has limited speech and hearing.


     The project documents a day-in-the-life for Sarah, which is impacted greatly and is largley made possible by the strong support network that is her family.

Every morning, Sarah's mother Janet helps her get dressed, take her medication, and makes sure her feeding tube is hooked up before getting her on the school bus.
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Janet and Sarah usually sing and talk while waiting for Sarah's bus to arrive, "The Wheels on the Bus" being a popular favorite.
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Sarah has an impressive collection of photographs, all of which Janet has covered with clear tape in attempts to delay the inevitable wear and tear from Sarah's constant attention.
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Lunchtime at the Opatrnys | Even after Janet's talked Sarah into coming in from playing outside to eat her lunch, Sarah still tries to convince her mom to go back outside.
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Sarah loves to play outside in her swimsuit, but she loves it even more when she gets her older siblings Megan and David to play in the water with her.
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In preparation for a speech therapy session, Janet helps Sarah put in her hearing aids - something Sarah's not too fond of at times.
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Sarah works with speech and hearing pathologist Kate Harrison and her 'talker,' a picture-oriented communication device that vocalizes sentences that Sarah puts together.
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Megan helps Sarah do her hair so that she can listen to music and dance in her chair.
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The sisters read a book together, Megan reading aloud while both she and Sarah sign along.
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Every night after dinner, Sarah and her father Dave have story-time together. Story-time for them can be anything from looking at Sarah's photos, reading a book, or singing the alphabet, before taking Sarah up to bed for the night
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